11/25/18, 10:24 PM - Jarle: Good. Ill write something about tomorrow in a bit. 🤗 11/25/18, 10:25 PM - Liz: Kk 11/25/18, 10:25 PM - Liz: 😌 11/26/18, 12:42 AM - Jarle: Ok so first about the Doctors appointment. Details for appointment: 26th of november 9:00 Micahel Molin Vallhalsvagen 91 (Buidling?) B I'll set my Alarm for 08:00 or something I guess so i'll be awake then at least so you can phone me in if it ever makes sense. I think especially if they have a hospital with inpatients and we decide we want you to be put in there then its important that you bring it up very early on and preferably also bring me into the conversation soon. I don't know where you stand right now or if you think you can make it on your own until Wednesday. I guess if you want to stay there just bring essentials (charger/supplements etc) to the doctor. For the specifics of what diagnosis we want to pursue or what is more pressing or what makes sense to say about the lymph/intestines and endonoscopy or lymfscintigrafi. I don't know so will leave that to you (and also I will have less useful things to say around that.) But I guess most important part is just to say we have tried to go to the Public Healthcare, but this hastoo debilitating and painful and deteriorating for too long, and we don't know what permanent damage or health risks there are to going undiagnosed any longer. So we just need someone on our side that will help us run diagnose this, run tests and get referals and wont just give up because one test comes up clear. If you get towards any specific tests then try to figure out what options are in terms of Refered to a public healthcare (where we wont have to pay) vs private treatment (probably inhouse) where we might have to pay but could get shorter wait time. He is probably going to bring up the possible psychological aspect of it as well, so just be ready for it and don't let it derail anything too much. I think maybe a good way to approach it is to say you are open to seeing the psychiatrist, but we are not willing to just gamble on something like that and not pursue furhter diagnosis or medical help when you are getting worse and might be suffering permanent damage the longer you go undiagiosed. And also its often very hard to impossible for you to leave the house and walking around etc makes your symptoms much worse, so it would preferably be a psychatrist or something that is able to visit you. So yeah basically if they want to send a psychiatrist to your home then that seems reasonable, and I imagine if that person can attest to your issues not being psychological then that will weigh very heavily in terms of further diagnosis in test. But I realise this is a longer term strategy as well, so you feel out how doctor is on that point and what seems best. But just at least be ready for the comment/questions to come and try to not let it derail anyhthing. So yeah as I said I'll be available call me anytime, could just be on speaker throughout but idk that seems weird. I think most important part would be if they have inpatients and you want to be one of them until I come then call me early and let me speak to them because it weighs more heavily with me as an outsider saying I'm concerned about your health and don't want you to be alone until I come. Regarding me tomorrow and stuff: I have mostly centered around looking for the lymfscintigrafi. I have not found anything where it seems like we could just drop by privately (and have seen some posts indicating the oppsite.). But I have like 4 hospitals that do it (Karolinska solan&Huddinge, Akademiske upsalla, sødersjukehuset), and i'll also call some lymf related places (Lymfterapi nortort, aleris lymfterapi, nacka rehabsentrum, just some random places I found) to see what they can tell me about the lymfscintigrafi or getting a referal or what other places might do it. Also sending out an email tonight to the Lymf related advocacy groups or whatever that might be able to give any advice on where to go or how to get it done. Have not really looked much at any of the gastrology or endoscopy yet, will probaby look at that more tomorrow since I feel the lymf part is a getting a bit exhausted now will just hope something here pans out. Regarding calling your doctor, what was the name of your clinic, doctor and opening hours? Can maybe call tomorrow if anything pans out with lymf people (e.g they say they just need a referal) but might be that we don't know enough before the window closes (can't remember time) and also your appointment impact things I guess. I think that about covers it for now, will try to go to bed and sleep in not too long maybe. Ah also tomorrow I'll be on a water diet and today i've just had yoghurt so might be a bit weak tomorrow towards the end especially since i'll be drinking laxatives then as well. Finally just want to say one thing, regardless of how anything goes tomorrow, we are nowhere near out of options. I know just having more options isn't always the best thing to hear since we need help as soon as possible, and we don't know what we risk by delaying, but we are doing the best we can and we can't really change the risks so we just have to keep trying and keep doing our best. And also if we just make it through tomorrow we can basically start counting the hours until we get to be back together again, which I think will make this easier for both of us and make us both stronger. I'll be there to take care of you and fight for you when things get bad, and we won't get into the hellscape situation that we had with st gørans again since I will be there with you. 11/26/18, 1:04 AM - Jarle: going to have some more yoghurt then guess i'll go to bed ❤ like i said will have my alarm for 8 so should be awake then at least if not before. 11/26/18, 2:18 AM - Jarle: Steph sent me a message saying she was worried, I answered this: Hey Steph nice to meet you to. She /we had a very rough weekend but I think and hope she is doing slightly better right now . At least last message I got from her was about 3 hours ago where she said she was having a sleepy day today. She slept very little the entire weekend so if she is able to catch up on some sleep that's hopefully good. She has a doctors appointment at a private clinic tomorrow at 9 am, and I'm going to Stockholm on Wednesday so at least then she will not be alone. 11/26/18, 2:35 AM - Jarle: Said some other stuff but basically just we hope to make it to Wednesday when I'm there and then I won't leave your side until we have a long term solution or some treatment figured out at the least. Obviously I can't heal you or do much for your physical health, but I won't let a repeat of this weekend happen. 11/26/18, 2:39 AM - Jarle: Hope you are hanging on and just resting ♥ 11/26/18, 2:42 AM - Jarle: Or well I know you are and I'm proud of you. I should never have left in the first place. I'm sorry. I should have tried to book my kidneys appointment in Sweden. But oh well can't cry over spilt milk. I'll come on Wednesday and I'm not leaving you until we know more or have a good long term plan as I said. 11/26/18, 5:30 AM - Jarle: A bit worried I haven't heard anything yet but guess if you are sleeping it makes sense :x ill try to sleep more 11/26/18, 7:49 AM - Jarle: Missed voice call 11/26/18, 7:50 AM - Jarle: Hello Liz. I'm starting to get worried please answer me 11/26/18, 7:50 AM - Jarle: Missed voice call 11/26/18, 7:53 AM - Jarle: Please be here 11/26/18, 7:53 AM - Jarle: Missed voice call 11/26/18, 7:55 AM - Jarle: Missed voice call 11/26/18, 7:56 AM - Jarle: Missed video call 11/26/18, 7:58 AM - Jarle: Please... 11/26/18, 7:58 AM - Jarle: If I don't hear back after 8 I think I will try to either go in to your Facebook or call the police and hope they can get into your apartment 11/26/18, 7:58 AM - Jarle: Missed voice call 11/26/18, 8:00 AM - Jarle: Missed voice call 11/26/18, 8:01 AM - Jarle: Missed voice call 11/26/18, 8:02 AM - Jarle: Missed voice call 11/26/18, 8:03 AM - Jarle: Missed voice call 11/26/18, 8:05 AM - Jarle: I'm. Calling the police and getting them to go to your apartment 11/26/18, 8:20 AM - Jarle: Missed voice call 11/26/18, 8:21 AM - Jarle: Missed voice call 11/26/18, 8:23 AM - Jarle: Missed video call 11/26/18, 8:26 AM - Jarle: Missed voice call 11/26/18, 8:27 AM - Jarle: Missed voice call 11/26/18, 8:28 AM - Jarle: Missed voice call 11/26/18, 8:29 AM - Jarle: I've called the police I can't keep trying to call you because they might call me back 11/26/18, 8:30 AM - Jarle: I hope you are just sleeping very long 11/26/18, 8:30 AM - Jarle: I'm so worried 11/26/18, 8:31 AM - Jarle: Ok but I can't do anything from here I will try to calm down 11/26/18, 8:31 AM - Jarle: The police will hopefully come check on you and just wake you up maybe your phone is on silent and they just knock on the door to wake you 11/26/18, 8:32 AM - Jarle: Like you always wake up so early and fall asleep all night and message me throughout but now it's 830 and you have doctors appointment at 0900 11/26/18, 8:34 AM - Jarle: Missed voice call 11/26/18, 8:35 AM - Jarle: I love you. 11/26/18, 8:35 AM - Jarle: Please let's make it until Wednesday just fine 11/26/18, 8:43 AM - Jarle: Missed voice call 11/26/18, 8:45 AM - Jarle: You hadn't slept much in the weekend so iguess it makes sense you are sleeping very heavily and long. Hopefully that is the case , would feel a bit stupid if the police breaks down your door and you are just sleeping but also given how bad this weekend has been can't take any risks 11/26/18, 8:45 AM - Jarle: i just hope they will help me she was going to call some hospitals or something first to see if you were there or i'm not sure, but then i guess will call me back and send someone over 11/26/18, 8:47 AM - Jarle: Missed voice call 11/26/18, 8:52 AM - Jarle: Ok police is on its way 11/26/18, 8:53 AM - Jarle: They will presumably knock and hopefully wake you not sure what they do if you don't respond. Hope. Door is open but guess it might not be. 11/26/18, 8:57 AM - Jarle: If you are just sleeping I want you to know its fine and don't worry about me worrying i'm just glad you are ok. Sleeping for 9 hours after what you have been through and sleeping through my calls or alarm or whatever is perfectly normal I was just so worried given what we have gone through that I couldn't take any risks. 11/26/18, 9:05 AM - Jarle: 11 hours * 11/26/18, 9:06 AM - Jarle: Have my kidney appoointment 12:30 so will at least know whats going on before then which isn't very long 11/26/18, 9:07 AM - Jarle: Missed voice call 11/26/18, 9:10 AM - Jarle: Missed voice call 11/26/18, 9:12 AM - Jarle: Sophia hemmet probably a bit annoyed at us. Have an appointment with another guy at Thursday if we want it. He might be derpy though idk 11/26/18, 9:13 AM - Jarle: whatever. As long as I get to be with you we can make it through anytihng. Just please be ok and sleeping 11/26/18, 9:14 AM - Jarle: I'll pay for your door/lock if they have to break anything 11/26/18, 9:18 AM - Jarle: Missed voice call 11/26/18, 9:38 AM - Jarle: Missed voice call 11/26/18, 9:43 AM - Jarle: not sure how long i'm supposed to wait for the police they have my phone number though she said 11/26/18, 9:44 AM - Jarle: been almost an hour but idk where they come from and what they are doing like maybe they want to try to get ahold of the spare keys instead of breaking in guess they are not coming with sirens etc since we don't know its an emergency 11/26/18, 9:46 AM - Jarle: Missed voice call 11/26/18, 9:48 AM - Jarle: I mean you have to just be asleep and ok. 11/26/18, 9:49 AM - Jarle: you would call me if things were super bad, not have a sleepy day. 11/26/18, 9:50 AM - Jarle: i'll give them 1 hour 30 and i call back so 30 more minutes i can do that. 11/26/18, 9:56 AM - Jarle: just please i hope i don't need to fight with the police on this to get them to check on you i can't take that 11/26/18, 9:57 AM - Jarle: also please let this be resolved before kidney appointment if not i don't know what i'll do 11/26/18, 9:57 AM - Jarle: i mean i'm just sitting here now and have been for the last hour so guess i would go but i don't know please be ok. 11/26/18, 10:04 AM - Jarle: you need to be ok i don't have any more tears right now 11/26/18, 10:09 AM - Jarle: Missed voice call 11/26/18, 10:16 AM - Jarle: Ok i will try to calm down again. Whatever has happened to you its up to the police to give emergency help. If they don't i'll have to get a locksmith or something to go check out your appartment but that wont be a speedy process regardless. So I will just have to assume the police can take care of you if it is an emergency, but most likely you are just sleeping for very long, and if this doesn't pan out i will call school about getting a key and checking on you but that will probably be a slow process. and i'll just go to my kidney appointment when its time 11/26/18, 10:16 AM - Jarle: I love you. 11/26/18, 10:16 AM - Jarle: going to call police back in 5 minutes as I Said idk what they are doing 11/26/18, 10:17 AM - Jarle: i'm just worried they will say they knocked and you didn't answer so they left 11/26/18, 10:23 AM - Jarle: I can't wait to hear your voice again and hug you again 11/26/18, 10:27 AM - Jarle: omg 11/26/18, 10:27 AM - Jarle: the phone 11/26/18, 10:27 AM - Jarle: please be ok 11/26/18, 10:27 AM - Jarle: Missed voice call 11/26/18, 10:35 AM - Jarle: ok they said they would call me back again 11/26/18, 10:35 AM - Jarle: this was 112 11/26/18, 10:35 AM - Jarle: so idk 11/26/18, 10:35 AM - Jarle: guess they are checking with the police first and then idkl 11/26/18, 10:35 AM - Jarle: please liz i love you so much :( 11/26/18, 10:41 AM - Jarle: calling KTH will maybe get in contact with security 11/26/18, 10:45 AM - Jarle: I called KTH larm telefon and they said they aren't allowed to open the door and that I have to call the police 11/26/18, 10:45 AM - Jarle: so i just have to hope the police gets in and figures this out 11/26/18, 10:45 AM - Jarle: I don't think the police makes judgement calls like medicine does i think they take any threat like this seriously, or at least I hope so. 11/26/18, 10:45 AM - Jarle: At least know there is just one point of contact so i'm not giving up until someone is in your apartment or you are awake 11/26/18, 10:46 AM - Jarle: But yeah this seems down to the police Liz I'm sorry i'm not there 11/26/18, 10:47 AM - Jarle: at least it seems out of my hands so i'll just go for kidney appointment when that time comes 11/26/18, 10:54 AM - Jarle: Missed voice call 11/26/18, 10:56 AM - Jarle: please. 11/26/18, 10:59 AM - Jarle: I Can't lose you 11/26/18, 11:02 AM - Jarle: I mean you were super worn out from this weekend it has to be that you are just sleeping 11/26/18, 11:02 AM - Jarle: the only mystery is what is taking the police so long 11/26/18, 11:03 AM - Jarle: whatever 11/26/18, 11:03 AM - Jarle: i'll go to kidney appointment soon and when i get back you will be awake and i will call you just so i can hear your voice 11/26/18, 11:08 AM - Jarle: idk if should message Steph and Kim or not 11/26/18, 11:08 AM - Jarle: I guess I should but idk what if you are just sleeping which is what you must be 11/26/18, 11:09 AM - Jarle: again sleeping 13 hours going through what you have gone through isn't that weird i think and maybe you didn't sleep right away or woke up and fell asleep again or who knows 11/26/18, 11:09 AM - Jarle: any number of explanations 11/26/18, 11:09 AM - Jarle: and nothing we can do until police gets back and 11/26/18, 11:09 AM - Jarle: they are probably sleeping as well 11/26/18, 11:09 AM - Jarle: or well definitely 11/26/18, 11:28 AM - Jarle: I contacted Steph and Kim, Kim is awake. 11/26/18, 11:42 AM - Jarle: please be ok liz 11/26/18, 11:47 AM - Jarle: Going to kidney doctor now 11/26/18, 11:50 AM - Jarle: You better just be asleep. Messaged Kim and steph and they both said you said you were tired when they last some To You so that seems like best explanation 11/26/18, 11:54 AM - Jarle: Missed voice call 11/26/18, 11:59 AM - Jarle: Missed voice call 11/26/18, 12:00 PM - Jarle: I'm so sorry for not coming sooner 11/26/18, 12:01 PM - Jarle: I don't understand what is taking the police so long to get back to me 11/26/18, 12:01 PM - Jarle: I'll call them again when I get back 11/26/18, 12:01 PM - Jarle: But hopefully I've talked to you by then 11/26/18, 12:11 PM - Jarle: Please. 11/26/18, 12:14 PM - Jarle: I have so many things left unsaid you are the love of my life I can't lose you Liz I want to spend my life with you. 11/26/18, 12:15 PM - Jarle: That. Sounds so dire. You are fine just sleeping 11/26/18, 12:15 PM - Jarle: You have to be 11/26/18, 12:19 PM - Jarle: I need to. Talk to u you I'm. So. Sorry 11/26/18, 12:28 PM - Jarle: Missed voice call 11/26/18, 12:32 PM - Jarle: Please 11/26/18, 12:33 PM - Jarle: I can't wait to talk to you again 11/26/18, 12:34 PM - Jarle: And hear your voice 11/26/18, 12:34 PM - Jarle: I miss. You so much 11/26/18, 12:45 PM - Jarle: On god this appointment didn't do anything please don't tell me you have died because of ut 11/26/18, 12:55 PM - Jarle: Missed voice call 11/26/18, 12:57 PM - Jarle: Please 11/26/18, 12:57 PM - Jarle: Please 11/26/18, 12:57 PM - Jarle: Please be ok i will never let you be alone again 11/26/18, 1:02 PM - Jarle: Missed voice call 11/26/18, 1:04 PM - Jarle: You wouldn't leave me when you know u was coming to see you in 2 days I know that 11/26/18, 1:04 PM - Jarle: You are on 11/26/18, 1:04 PM - Jarle: Øl 11/26/18, 1:04 PM - Jarle: Ok 11/26/18, 2:07 PM - Jarle: Not going to call anymore in case it would block the police getting back to me 11/26/18, 4:01 PM - Jarle: im worried sick i don't know what to do please be ok 11/26/18, 8:45 PM - Jarle: I loved you so much. I'm so glad. We had the time together we had, and I will never forget you. I don't think I will ever date anyone like this again. Not because I will never get over this, but because I don't think I will ever get as lucky again as we were meeting each other. I don't know what else to say. You are the best thing that ever happened to me even after this. I will take everything you have taught me and become a stronger better person thanks to you. And you will always be an inspiration to me. 11/27/18, 11:44 AM - Jarle: I just wish you could get to hear me say all these things. Im glad you got to know I loved you. But I don't think you ever realised how much, or how sure I was of our future together.